There are three Amyloidosis Clinics currently operating in Australia:
* Australia Wide
Dr Simon Gibbs
Consultant Haematologist (Myeloma and Amyloidosis), Box Hill Hospital, Victoria.
Fax Referrals: (03) 9897 3792
Dr Gibbs is a specialist haematologist with experience in the diagnosis and treatment of a wide range of malignant and benign haematological disorders, including acute and chronic forms of leukaemia, lymphoma , myeloma, clotting and red cell disorders.
He has particular research experience and interest in the diagnosis and treatment of plasma cell disorders, such as multiple myeloma, all forms of amyloidosis (AL, AA, senile systemic, LECT2 and hereditary types), MGUS and monoclonal immunoglobulin deposition disease.
Dr Gibbs is a member of the Australasian Leukemia and Lymphoma Group (ALLG), a group that specialises in the development and execution of clinical trials within Haematology, and is a member of the International Renal and Monoclonal Gammopathy Research Group.
He was a Clinical Academic Research Fellow at the National Amyloidosis Centre in London UK for 4 years, and a Consultant Haematologist with Central Manchester University Hospital (UK) (in Myeloma and Amyloidosis) for 2 years.
Dr Gibbs is currently also an Amyloidosis Consultant with the Dept of Immunology at Westmead Hospital (NSW) and an honorary Senior Lecturer at Monash University (VIC).
* NSW only
Westmead Hospital, in conjunction with the Adam Gardiner Fund Incorporation, started an Amyloidosis Clinic, commencing on August 2007.
The aim of the Clinic is to provide, through a team approach, integrated care for people with Amyloidosis. Important aspects include rapid diagnosis of patients suspected of having Amyloidosis and for those in whom Amyloidosis has already been diagnosed, an assessment of the extent of their disease involvement. All patients will be provided with advice on treatment options (that may be then taken up at Westmead or by their own doctors closer to where they live) and educational material to assist with their decisions on treatment and other aspects of care.
The Westmead team includes each of the specialists needed to provide assessment and care for all of the potential problems caused by Amyloidosis: haematologists, immunologists, neurologists, nephrologists (kidney specialists), cardiologists, nuclear medicine physicians (for diagnostic scans) and pathologists (to examine biopsies). Each of the Clinic doctors has a special interest in Amyloidosis.
An important aspect of the Clinic is the ability to carry out genetic testing for the rare forms of Amyloidosis that are inherited; this is the only genetic service for this disorder in Australia.
The Clinic is affiliated with the UK National Amyloidosis Centre, whose director; Prof Philip Hawkins is a consultant to the Westmead Clinic.
Appointments can be made through Linda Mekhaelon (02) 9845 8738
Patients will require a referral letter from their GP or specialist and will be billed Medicare schedule fees.
The Princess Alexandra Hospital Amyloidosis Centre aims to improve the diagnosis and treatment of all patients with amyloidosis. This is being done through a program of co-ordinated clinical care, patient education and support, training of doctors and research into better diagnostic and monitoring tools, as well as clinical trials of new treatments.
The Princess Alexandra Hospital Amyloidosis Clinic was established in 2009. This clinic offers services to patients with all types of Amyloidosis.
The services offered include:
- Diagnosis of amyloidosis
- Amyloidosis typing
- Assessment of organ and tissue damage
- Treatment advice
- Treatment care
- Referral for genetic testing
- Information about available treatment trials
- Support and education.
The clinic is staffed by a team of health professionals which includes haematologists, cardiologists, renal physicians, pathologists, specialised nurses, social workers and a support and education officer. Other specialist services from the PA Hospital are available depending on individual need.
You may see one or more or all of these specialist doctors depending on the type of Amyloidosis you have and which organs are involved.
To make an appointment your GP will need to send a referral to the PA Hospital Haematology Department, details as follows:
Phone: (07) 3176 6199
Fax: (07) 3176 2670
Referral letter needs to include the following details:
- Patient Name
- Patient Date of Birth
- GP Contact Details
- Signs / Symptoms
- Test Results
- Provisional Diagnosis
- Other Relevant Information
- If relevant, pathology results which may assist determining the duration/progression of a blood abnormality
You can make a donation through their website at http://www.pafoundation.org.au/support-us/amyloidosis-centre/
* New Zealand
Waikato Hospital, Hamilton, New Zealand
Dr Goodman has over 10 years experience working with Amyloidosis patients, mainly with the National Amyloidosis Centre in the UK.